Grade II Astrocytoma (IDH1 Mutant) treatment plan
Hi Stephen and all, Thank you for allowing me to create this thread. I am a 31 years old male from Australia. I recently got diagnosed with a Grade II Astrocytoma with histopathology report as...
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Reirradiation + ketogenic diet + intermittent fasting, randomized trial
ERGO2: A prospective randomized trial of calorie restricted ketogenic diet and fasting in addition to re-irradiation for malignant...
View ArticleQuestions on my mom's drug cocktail(GBM Patient)
Hi folks/Stephen,My mom was diagnosed with Glioblastoma(GBM) in September 2017. Following is the details of her GBM: Her last scan was 6 months back and showed no growth, choline elevation or...
View ArticleRecurrence: VAL-083 or CCNU? Keytruda?
Hello all,A few questions for my friend who is unfortunately having a recurrence.1) Following surgery, is it better to go with VAL-083 since he is unmethylated or stick with CCNU since that is more the...
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CMV (Cytomegalovirus) - specific dendritic cell vaccine trial summary
https://sci-hub.tw/https://clincancerres.aacrjournals.org/content/early/2020/07/25/1078-0432.CCR-20-1082.longOnce, Twice, Three Times a Finding: Reproducibility of Dendritic Cell Vaccine Trials...
View ArticlePromising Pathway Act: The most important bill ever introduced into congress...
Quote from Musella Foundation website:This bill - if passed - will allow you to get access to many treatments quickly! It will increase the amount of research - particularly of combination cocktails,...
View ArticleChloroquine phase 1 trial
Chloroquine combined with concurrent radiotherapy and temozolomide for newly diagnosed glioblastoma: a phase IB trialAbstractTreatment of glioblastoma xenografts with chloroquine results in...
View ArticleManaging skin side effects of Optune
Prevention and Management of Dermatologic Adverse Events Associated With Tumor Treating Fields in Patients With GlioblastomaPDF available for free download...
View ArticleUrgent help needed - Butterfly Glioblastoma
September 12, 2020Hi Stephen & All,Seeking your help relating to my Mothers Brain Tumor treatment, please help with the treatments, procedures and medicines. We are in India and we have very...
View Article18 year old APXA 2nd recurrence after treatment, immunotherapy optivo with...
Hello and thank you for creating and adding me to this blog. Sorry for the long post.My 18 year old son is battling a recurrence of APXA a rare high-grade brain tumor. He just had his 3rd brain...
View ArticleLab study points to ketogenic diet as not effective for slowing glioblastoma...
I spotted this, and wondered whether there are any implications for the theory that ketogenic diets can help stop glioblastoma tumours growing?Although it's only on cells and mice, it doesn't look...
View ArticleTreatment options for a first recurrence of GBM
Hi everyone,Few questions regarding my mother, who unfortunately has had a recurrence of her Glioblastoma. BACKGROUNDIn August 2019, the Neurological Institute of McGill University (Montreal, Canada)...
View ArticleExpanded Access Protocol for PVS-RIPO (modified poliovirus) treatment for GBM
This just posted on clinicaltrials.gov on Oct 23:https://clinicaltrials.gov/ct2/show/NCT04599647EAP for the Treatment of Glioblastoma With PVSRIPOscroll down to bottom of the above link for contact info
View ArticleLomustine hair loss (alopecia) experience
Hi allWondering if anyone who has taken lomustine or CCNU experienced hair loss or low-grade alopecia as a result. If so, could you share the experience, how much loss, how long did it take for hair to...
View ArticleQuestions for newly diagnosted (Melatonin, Chloroquine, Celebrex and NO)
Hi everyone,I'm so grateful to have found this blog to give me hope for my sister. Thank you so much Stephen to have create this. She's been diagnosed recently with glioblastoma (Methyled). She's...
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Blockade Strategy Feedback
Hello, everyone!I was diagnosed in May 2019 with GBM and I have completed SOC in Apr. 2020 (Total resection, 42days Chemo/Radiation, and 6 months maintenance chemo). I have done a lot of research on...
View ArticleDexamethasone limits benefit of Immune checkpoint blockade
New study published in clinical cancer research:Concurrent Dexamethasone Limits the Clinical Benefit of Immune Checkpoint Blockade in Glioblastomahttps://pubmed.ncbi.nlm.nih.gov/33239433/from the...
View ArticleIntranasal perillyl alcohol + low carbohydrate diet
Adjuvant effect of low-carbohydrate diet on outcomes of patients with recurrent glioblastoma under intranasal perillyl alcohol therapy"Results:In the 1-year follow-up, the POH/LCD group showed a...
View ArticleMebendazole + temozolomide phase 1 trial results
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7817892/Mebendazole and temozolomide in patients with newly diagnosed high-grade gliomas: results of a phase 1 clinical trialThis was a phase 1 safety and...
View ArticleOur story/ 4years OS
My husband was diagnosed in September 2016 at 38 years with GBM IV in frontal lobe, 8cm diameter size. He lived 4 years and 2 months from diagnosis.I remember over 4years ago I was desperatly looking...
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